N has done well so far with the reduced meds. He had 3's all last night and only had one higher score of 7 this morning due to spitting up a lot after eating. The nurse that had him today, who we really like, is going to try something different with his eating and see if it works. She thinks that he is just drinking way too much because it's being offered and is trying to see if eating less will cause less spitting up. I'm hoping it works.
If his scores continue to stay low, they will reduce the meds again tomorrow. Right now, we are thinking it will be another two weeks or so before he gets to come home. It could be less, it could be more. It all depends on him and how well he adjusts.
He was a little fussy for us today. He would be fine and get to sleep, but any movement would wake him right back up. My guess is that he was still hungry. We tried to get him into deep sleep mode for a while, but finally decided to give him another ounce of formula and see if that made a difference. It did! :) He went to sleep soon after that.
He's getting a little bald spot on the back of his head. :)
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We were so worried about Ella at the very beginning. She would projectile vomit after every feeding. After several tests (including an ultrasound & MRI) we figured out she was over-eating and throwing up the "extra".
Hope that smart nurse had hit the nail on the head!
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